Rehab and Recovery for Brain Injury
Hey, it’s Jenny with Life’s a Polyp and I’veÂ
been meaning to make this video for a while,  but I had a really cool uh learning seminarÂ
that I went to. It was hosted by the Centre for Neuroskills. They are based inÂ
Texas, but they have other locations uh like I know in California. and they wereÂ
talking about brain injury and how that affects daily living and things that can actuallyÂ
help with it. Uh so before we get into that,  I want to remind you if you haven’t subscribed,Â
I would love for you to join the Life’s a Polyp family on YouTube. So please make sureÂ
that you are. So if you guys remember, uh if you’ve been following, I a few years agoÂ
fell and hit my head and I actually did that 10 years ago also. And both times I ended up withÂ
a brain injury. The first time we didn’t realize really that’s what I had. Um because I didn’tÂ
we didn’t connect the signs, the symptoms until six, seven years later actually um when I wasÂ
diagnosed with abdominal migraine. And we came to the conclusion that that started when IÂ
fell and hit my head the first time. Well,  the second time I fell and hit my head, itÂ
was apparent within a few hours that I had a concussion and it led into postconcussionÂ
syndrome. It has been over a year or two maybe by now. And so I’ve been left with migraine andÂ
it’s a constant migraine. I take preventative migraine medication to help keep it in check. UhÂ
but life has really changed for me and it is much easier now than what it was. But I experiencedÂ
a lot of emotion dysregulation. I it was as if I had lost all my coping skills. Um I still haveÂ
trouble with cognitive u with executive function sometimes. Memory is an issue. Even my speech IÂ
have a hard time sometimes thinking of the word I want. Um like I can’t think of the word. It usedÂ
to be that I could only think of the definition.  Now I can find a similar enough synonym, but IÂ
say things backwards sometimes. I make up words. I do word salad sometimes. Um it’s not just theÂ
normal uh with age that we forget things here and there type of thing. It’s more than that. Um, andÂ
so I learned a lot at this seminar and I wanted to share that all with you because brain injuriesÂ
can be a lot of different things, right? They can  be strokes, they can be falls, uh, anything thatÂ
happens to the brain is a brain injury. And from what the Center for Neuroskills has learnedÂ
through their research and their programs is that it doesn’t matter when it happened. you canÂ
receive rehab for it and see improvements. And I really liked not only their breakdown of whatÂ
was happening with a brain injury, why it leads to these different issues, but also their umÂ
model for treatment for brain injury. Now, yes, some brain injuries are going to be permanent.Â
Um but um what they’ve seen is that through treatment you can see improvements. Um you mayÂ
not be able to return to work um but that there will be improvements. And the ultimate goal thatÂ
they have in their rehab is getting people back to  work, getting them back to their daily living,Â
their lives that were before the brain injury. So I’m going to share with you what they sharedÂ
with me and they talked to about uh with any type of brain injury what happens is that our physicalÂ
functioning I our psycho psychosocial interactions uh visual perpetual skills our cognitive abilitiesÂ
memory processing speed and problem solving multitasking those were all things that getÂ
affected um by a brain injury and so what happens is that wherever the injury is, there’s a thatÂ
part of the brain is not communicating the way that it should to the rest of the brain. And thereÂ
can be multiple areas within the brain that are  damaged. And what happens is so you have a neuronÂ
and it has an axon. They called it like a noodle cause it it’s like a tell. And so if you have aÂ
the communication of these neurons in your brain, what they do is like it’s here and it’s a chainÂ
of command type of thing. Well, with brain injury, there’s going to be neurons that are damaged.Â
And so that communication gets messed up. And with neuroplasticity, meaning that it can growÂ
these axons to reach different neurons, but that takes time and it takes a lot of repetition.Â
um using the brain to be able to rebuild those connections to have that plasticity to rebuild.Â
So what happens is if it’s supposed to connect here and communicate to here but this axon has isÂ
damaged or the side is no longer connecting to the next one. it has to uh grow either a new one if itÂ
can or a different neuron is going to have to grow to be able to connect to communicate to back intoÂ
that line of communication. And when these things are happening what we can what we’ll see accordingÂ
to the Centre for neuroskills is that uh you may see symptoms in either your hormones so yourÂ
neuroendocrine function, your sleep, or your gut um your microbiota organisms the microorganismsÂ
in your gut um you’ll have gut dysbiosis and if you have one they’re going to connect and it’sÂ
going to affect the other two and so there’s a lot of disruption that happens, a lot of differentÂ
symptoms that can happen from a brain injury. So, what is their model and what is the model that I’mÂ
wanting to uh to start practicing? I’ve done some in the past and I want to add more on to it.Â
So, they really recommend a holistic approach of physical therapy, occupational therapy,Â
speech therapy, and mental health counseling. Uh because like I mentioned, there’s a lot aÂ
lot of times and it’s understandable. Not only you’re trying to process and navigate somethingÂ
that’s happened to you, but your brain is not  functioning. It’s not communicating the way thatÂ
it was supposed to before it became injured. And so there’s a lot of dysregulation of emotions. UmÂ
so that helps also with being learned through the process to rec to learn coping skills again andÂ
also helping with the brain to heal itself. Um, physical therapy helps with, you know,Â
not only just muscle strength, but safety,  increased blood flow and decreased inflammation.Â
That can be very important for healing as well. Occupational therapy can help with kind ofÂ
treating those cognitive deficits that interfere with daily functioning. And occupational therapyÂ
is a really interesting, really great therapy that I don’t think gets highlighted as much asÂ
physical therapy. Um, I’ve used it for tendonitis, um, in my wrist and my elbow. And yes, thatÂ
has nothing to do with brain injury for me, but it’s things that I wouldn’t necessarily thinkÂ
about. And it’s kind of the way I look at it was that it was learning how to do things and that wasÂ
not it was not needing physical strengthening for, but it was learning how to do things um, in aÂ
different way perhaps so that would allow for it. But you combine that with the brain injury andÂ
because you’re learning things in a different way,  it also can help with those cognitive deficits.Â
And then speech therapy is not just about speech. It involves cognitive training. So that can helpÂ
with executive function, with brain processing, with um cognitive processing, all those differentÂ
functions going on there. I think a lot of us, at least I know, I do when I think of speechÂ
therapy, I mainly either think about learning how to speak or with difficulty swallowing andÂ
doing um improving that. I didn’t ever think about really speech therapy as far as the cognitiveÂ
functioning and improving that. And that’s what I’m wanting to actually add on because I have doneÂ
physical therapy. um not necessarily for my brain injury, but I have done physical therapy um atÂ
least once if not twice since my last fall. I’ve done occupational therapy. Again, that wasn’tÂ
for my brain injury. Um but I did receive that for two and a half months or so, but after myÂ
fall at some point, but I haven’t done speech therapy and I I’ve never done speech therapy. IÂ
would like to see what that can do for me. Um, I’ve done counseling. I’ve I’m in counselingÂ
still. That was very helpful working through all these things. Um, now I do know that sometimesÂ
I know at least with home health agencies, which I’m not needing home health. I’m able to leave myÂ
home. Um, I’m not sure if this is the same way for outpatient though, is that speech therapy cannotÂ
be done by itself. Um, and so they would need to do physical or occupational therapy. Also, I’mÂ
not sure what the guidelines are for that um in outpatient settings. I’m going to find out becauseÂ
my plan is to ask for speech therapy and if they need me to add on another therapy, I will. Um, I’mÂ
hoping I can just do the speech therapy unless it really would be beneficial with my fall um to addÂ
on one of the other ones. I’m physical therapy is always beneficial I think at least for me cause IÂ
can always use some exercise and with guidance so that I’m not messing it up. Um I’m always needingÂ
to restrengthen my core again which helps protect uh from hernias and it helps with um managingÂ
eliminating chronic back pain from my abdominal surgeries. So I know I could definitely benefitÂ
from physical therapy. actually do better with exercise if it’s under physical therapy versusÂ
on my own or even a personal trainer. Um, but these are some of the things that I learnedÂ
from the Centre for Neurosklls. And this was  not a sponsored video or anything. It’s justÂ
something that was I found really interesting, very helpful information that I wish I had hadÂ
before I fell. Um, I think my um it would have changed the trajectory of my recovery from a brainÂ
uh injury. Had I had this information before, it was not any information that was shared withÂ
me and by any of the providers that I had. I don’t think this is necessarily a wide well-known modelÂ
for brain injury rehab, but I think it should be. It absolutely sounded incredible. They actuallyÂ
they started their um program, their center, and I’m trying to retell the story. It’s been aÂ
little bit, but so the founder, their brother had some type of brain injury and it had been like 20Â
years before. And so the center they opened up, they were doing research and things like thatÂ
and really kind of with a goal of helping their brother um and people like them. And they foundÂ
that even 20 years after that brain injury, they implemented this model um for their brotherÂ
and their brothers showed signs of improvement with their functioning mentally, physically,Â
cognitively, all those different things. Um and so it’s it sounded incredible to me. It’sÂ
something I’m looking into more. There are I know at least in my state there are other similarÂ
programs. Um, again, I thought I did not know about this. Nobody talked about any of it whenÂ
I had my uh my falls. And so, I have some places that I’m looking at locally. One of the niceÂ
things with the center for neurosklls um is that uh during this presentation they shared that ifÂ
they accepted a patient um into the program and they were out of state, they would come get theÂ
person and take them back to the to the rehab center um for free. it wouldn’t add there wouldn’tÂ
be an additional cost or anything for that which  I thought was really an amazing um service thatÂ
they’re doing for for individuals. Uh they did really neat things um that would that were evenÂ
uh helpful for different patients. For example, as part of a therapy, um, someone needed this,Â
they had trouble getting into this vehicle, not a real vehicle, but is like a simulatorÂ
type of thing that they could work on learning, relearning skills with this. Um, so they hadÂ
another patient build a stole. Um, so you know, you may have with your with certain jobs orÂ
skills that someone has, they give them real life experience to help practice and relearn how to doÂ
those things and how to do them safely, too. Um, and that’s also beneficial for other patients andÂ
how they were able to really think out of the box. Um, really give hands-on things that, uh, is realÂ
life experience for individuals in their program. So, it was just really cool. They have uh theyÂ
even had like if someone was electrical um job of some type, they made like these components for theÂ
for the person to practice on uh to help relearn those skills, relearn how to do those things. UmÂ
because it’s not just about physical um ability, right? It’s not just like a strength or dexterityÂ
thing. is also the brain communicating to the  rest of the body to operate in a certain fashionÂ
whether that’s um you know we’re speaking or we’re doing um and so there’s a lot that goes into whatÂ
a brain injury can affect and a lot of different things that can actually help with it. So I hopeÂ
that you found this helpful. I was just I’m still in awe by this information. Um, and yeah, ifÂ
you’ve had a brain injury, I’d love to hear  your experience, what’s helped you, what you mightÂ
be looking at later down the road to try to help with it. Um, and I will I’ll give updates on myÂ
journey, my experiences with speech therapy. Um, you mean I I’m going to ask for it. That doesn’tÂ
mean that they’ll give it to me, but I’m going to  ask for it and I will uh update on what thatÂ
comes what comes from it. Uh, I do a lot of updates mainly on Facebook though. Um, so you mayÂ
want to check out their over there also. But I will continue giving that information and updatesÂ
and things here too. So if you guys have any ideas or suggestions of things that you would like toÂ
learn about, um, please let me know down below.
Jenny shares what she learned about an all-around holistic treatment model for brain injury rehab and how she plans to incorporate what she learned
Life’s a Polyp explores daily life with chronic illness caused by two rare diseases – Familial Adenomatous Polyposis and Short Bowel Syndrome.
Find more at www.LifesaPolyp.com and @LifesaPolyp across Social Media Platforms
Shop Rare Disease Awareness Products where ALL proceeds are donated to NORD Familial Adenomatous Polyposis Research Fund: www.CafePress.com/LifesaPolyp
#LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome
Sound effects obtained from https://www.zapsplat.com